🧬 Genetic Disorder

Arthrogryposis Multiplex Congenita

Also known as: AMC, Multiple Congenital Contractures

Arthrogryposis Multiplex Congenita (AMC) describes a condition characterized by multiple joint contractures present at birth. It is not a specific diagnosis but rather a descriptive term encompassing a variety of underlying conditions that limit fetal movement in the womb. These contractures can affect any joint but commonly involve the hands, wrists, elbows, shoulders, hips, knees, and feet. The severity and specific joints affected vary widely among individuals with AMC.

👥 1 in 3,000 to 1 in 5,000 live births Prevalence
🔬 15 Active Trials

Imagine a baby born with stiff joints that don't bend easily. That's like Arthrogryposis. It happens when the baby doesn't move enough inside mommy's tummy. Doctors and therapists help them stretch and move so they can play and grow stronger.

Signs & Symptoms

  • Multiple joint contractures
  • Muscle weakness
  • Fibrous or bony ankylosis
  • Dislocated joints
  • Dimpling of the skin over joints
  • Absent or decreased joint creases
  • Cylindrical limbs
  • Limited range of motion
  • Respiratory problems (in severe cases)
  • Swallowing difficulties (in severe cases)

Treatment Options

THERAPY

Physical Therapy

HIGHLY EFFECTIVE
THERAPY

Occupational Therapy

HIGHLY EFFECTIVE
THERAPY

Serial Casting

MODERATELY EFFECTIVE
SURGERY

Surgery (tendon release, osteotomy)

MODERATELY EFFECTIVE
SUPPORTIVE

Bracing and Splinting

SUPPORTIVE
SUPPORTIVE

Respiratory Support (if needed)

SUPPORTIVE
SUPPORTIVE

Feeding Support (if needed)

SUPPORTIVE

Diagnosis

  • Physical examination
  • Prenatal ultrasound
  • Genetic testing (whole exome sequencing, chromosomal microarray)
  • Muscle biopsy
  • Neurological examination
  • Imaging studies (X-rays, MRI)

History

Descriptions of congenital contractures date back to ancient times. However, the term 'Arthrogryposis Multiplex Congenita' was formally introduced in the medical literature in the 20th century to describe the constellation of findings associated with multiple congenital joint contractures.

Recent Breakthroughs

2022

Identification of Novel Genes Associated with Distal Arthrogryposis

Recent research has identified new genes associated with distal arthrogryposis, expanding our understanding of the genetic basis of these conditions and improving diagnostic capabilities.

2023

Advancements in Prenatal Diagnosis of Arthrogryposis

Improved prenatal diagnostic techniques, including advanced ultrasound and genetic testing, allow for earlier detection of arthrogryposis, enabling timely counseling and management planning.