🧠 Neurological Disorder

Hereditary Spastic Paraplegia

Also known as: HSP, Familial Spastic Paraplegia, Strümpell-Lorrain Disease, Spastic Paraparesis

Hereditary Spastic Paraplegia (HSP) is a group of inherited neurological disorders characterized by progressive weakness and stiffness (spasticity) of the legs. This condition results from dysfunction of the long corticospinal tracts, which control voluntary movement. HSP can be classified as either 'pure' or 'complex', depending on whether additional neurological symptoms are present.

👥 1-9 / 100,000 Prevalence
🔬 25 Active Trials

Imagine your legs have a hard time listening to your brain, making them stiff and weak. That's like Hereditary Spastic Paraplegia. It's a problem with the wires (nerves) that tell your legs what to do, and it can make walking difficult.

Signs & Symptoms

  • Progressive lower limb spasticity
  • Muscle weakness in legs
  • Increased reflexes
  • Clonus
  • Gait abnormalities (scissoring gait)
  • Urinary urgency or incontinence
  • Sensory disturbances (in some cases)
  • Ataxia (in complex HSP)
  • Cognitive impairment (in complex HSP)
  • Epilepsy (in complex HSP)
  • Optic atrophy (in complex HSP)
  • Ichthyosis (in complex HSP)

Treatment Options

MEDICATION FDA Approved

Baclofen

MODERATELY EFFECTIVE
MEDICATION FDA Approved

Tizanidine

MODERATELY EFFECTIVE
MEDICATION FDA Approved

Diazepam

MODERATELY EFFECTIVE
MEDICATION FDA Approved

Botulinum Toxin Injections

MODERATELY EFFECTIVE
THERAPY

Physical Therapy

HIGHLY EFFECTIVE
THERAPY

Occupational Therapy

HIGHLY EFFECTIVE
SUPPORTIVE

Assistive Devices (e.g., walkers, braces)

SUPPORTIVE
GENE THERAPY

Gene Therapy (for specific gene mutations)

EXPERIMENTAL
SURGERY FDA Approved

Intrathecal Baclofen Pump

MODERATELY EFFECTIVE

Diagnosis

  • Neurological examination
  • Detailed patient history
  • Family history assessment
  • Magnetic Resonance Imaging (MRI) of the brain and spinal cord
  • Electrophysiological studies (EMG/NCS)
  • Genetic testing (for known HSP genes)

History

The first detailed description of Hereditary Spastic Paraplegia is attributed to Adolph Strümpell in the late 19th century, followed by Ernest Lorrain, hence the historical name Strümpell-Lorrain disease. Subsequent research has identified numerous genetic mutations associated with different forms of HSP, leading to a better understanding of its diverse etiologies and clinical presentations.

Recent Breakthroughs

2022

Novel Gene Identified for Autosomal Recessive HSP

Researchers identified a new gene, *KIF1C*, associated with autosomal recessive HSP. Mutations in this gene disrupt axonal transport and contribute to neurodegeneration.

2023

Gene Therapy Shows Promise in Preclinical Models of SPG4 HSP

AAV-mediated gene therapy targeting the *SPAST* gene (SPG4) demonstrated significant improvement in motor function and reduced spasticity in preclinical mouse models of SPG4-related HSP.